International Journal of Changes in Education

• Advance HE. (2020). Equality, diversity and inclusion. Retrieved from: https://www.advancehe.ac.uk/guidance/equalitydiversity-and-inclusion
• Afifi, T., & Steuber, K. (2009). The revelation risk model (RRM): Factors that predict the revelation of secrets and the strategies used to reveal them. Communication Monographs, 76(2), 144–176. https://doi.org/10.1080/03637750902828412
• Allen-Collinson, J., & Hockey, J. C. (2008). Autoethnography as ‘valid’ methodology? A study of disrupted identity narratives. International Journal of Interdisciplinary Social Sciences, 3(6), 209–217.
• Andrews, A. (2020). Autoimmune actions in the ableist academy. In N. Brown & J. Leigh (Eds.), Ableism in academia: Theorising experiences of disabilities and chronic illnesses in higher education (pp. 103–123). UK: UCL Press.
• Berger, R. (2015). Now I see it, now I don’t: Researcher’s position and reflexivity in qualitative research. Qualitative Research, 15(2), 219–234. https://doi.org/10.1177/1468794112468475
• Braun, V.,& Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597. https://doi.org/10.1080/2159676X.2019.1628806
• Brown, N. (2020). Disclosure in academia: A sensitive issue. In J. Leigh & N. Brown (Eds.), Ableism in academia: Theorising experiences of disabilities and chronic illnesses in higher education (pp. 51–73). UCL Press.
• Brown, N., & Leigh, J. (2018). Ableism in academia: Where are the disabled and ill academics? Disability & Society, 33(6), 985–989. https://doi.org/10.1080/09687599.2018.1455627
• Brown, N., & Leigh, J. (2020). Ableism in academia: Theorising experiences of disabilities and chronic illnesses in higher education. UK: UCL Press.
• Butler, J. (2020). Performative acts and gender constitution: An essay in phenomenology and feminist theory. In C. McCann, S.-K. Kim & E. Ergun (Eds.), Feminist theory reader: Local and global perspectives (pp. 415–427). Routledge.
• Butler, J. (2011). Your behavior creates your gender. Retrieved from: https://www.youtube.com/watch?v=Bo7o2LYATDc&feature=youtu.be
• Cann, C. N., & DeMeulenaere, E. J. (2012). Critical co-constructed autoethnography. Cultural Studies → Critical Methodologies, 12(2), 146–158. https://doi.org/10.1177/1532708611435214
• Chrisler, J. C. (2011). Leaks, lumps, and lines: Stigma and women’s bodies. Psychology of Women Quarterly, 35(2), 202–214. https://doi.org/10.1177/0361684310397698
• Coughlan, G.,& Clarke, A. (2002). Shame and burns. In P. Gilbert & J. Miles (Eds.), Body shame (pp. 155–170). Brunner-Routledge.
• Custer, D. (2014). Autoethnography as a transformative research method. The Qualitative Report, 19(37), 1–13.
• Defenbaugh, N. L. (2011). Dirty tale: A narrative journey of the IBD body. USA: Hampton Press.
• Defenbaugh, N. L. (2013). Revealing and concealing ill identity: A performance narrative of IBD disclosure. Health Communication, 28(2), 159–169. https://doi.org/10.1080/10410236.2012.666712
• Department of Health. (2012). Long-term conditions compendium of information. Retrieved from: https://assets.publishing.service. gov.uk/media/5a7c638340f0b62aff6c154e/dh_134486.pdf
• Domingo, C. R., Gerber, N. C., Harris, D., Mamo, L., Pasion, S. G., Rebanal, R. D., & Rosser, S. V. (2022). More service or more advancement: Institutional barriers to academic success for women and women of color faculty at a large public comprehensive minority-serving state university. Journal of Diversity in Higher Education, 15(3), 365–379. https://doi.org/10.1037/dhe0000292
• Ellis, C., & Bochner, A. P. (2000). Autoethnography, personal narrative, reflexivity: Researcher as subject. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 733–768). Sage Publications.
• Gates, T. G., Beazley, H.,& Davis, C. (2020). Coping with grief, loss, and well-being during a pandemic: A collaborative autoethnography of international educators during COVID-19. International Social Work, 63(6), 782–785. https://doi.org/10.1177/0020872820949622
• Goffman, E. (1959). The presentation of self in everyday life. USA: Knopf Doubleday Publishing Group.
• Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. USA: Prentice-Hall.
• Hale, E. D., Radvanski, D. C., & Hassett, A. L. (2015). The man-in-the-moon face: A qualitative study of body image, self-image and medication use in systemic lupus erythematosus. Rheumatology, 54(7), 1220–1225. https://doi.org/10.1093/rheumatology/keu448
• Haynes-Baratz, M. C., Bond, M. A., Allen, C. T., Li, Y. L., & Metinyurt, T. (2022). Challenging gendered microaggressions in the academy: A social–ecological analysis of bystander action among faculty. Journal of Diversity in Higher Education, 15(4), 521–535. https://doi.org/10.1037/dhe0000315
• Henderson, B.,& Noam Ostrander, R. (2008). Introduction to special issue on disability studies/performance studies. Text and Performance Quarterly, 28(1–2), 1–5. https://doi.org/10.1080/10462930701754267
• Hochschild, A. R. (1983). The managed heart: Commercialization of human feeling. USA: University of California Press.
• Hughes, E. (1962). Good people and dirty work. Social Problems, 10(1), 3–11. https://doi.org/10.2307/799402
• Israel, M., & Hay, I. (2006). Research ethics for social scientists. USA: SAGE Publications.
• Janssen, R. (2021). Living with collagenous colitis as a busy academic: Chronic illness and the intersection of age and gender inequality. In N. Brown (Eds.), Lived experiences of Ableism in academia: Strategies for inclusion in higher education (pp. 159–170). Policy Press.
• Lapadat, J. C. (2017). Ethics in autoethnography and collaborative autoethnography. Qualitative Inquiry, 23(8), 589–603. https://doi.org/10.1177/1077800417704462
• Longhurst, R. (2001). Bodies: Exploring fluid boundaries. UK: Routledge.
• Méndez, M. (2013). Autoethnography as a research method: Advantages, limitations and criticisms. Colombian Applied Linguistics Journal, 15(2), 279–287. https://doi.org/10.14483/udistrital.jour.calj.2013.2.a09.
• Millen, N., & Walker, C. (2001). Overcoming the stigma of chronic illness: Strategies for normalisation of a ‘spoiled identity’. Health Sociology Review, 10(2), 89–97. https://doi.org/10.5172/hesr.2001.10.2.89
• Pifer, M. J., & Baker, V. L. (2014). “It could be just because I’m different”: Otherness and its outcomes in doctoral education. Journal of Diversity in Higher Education, 7(1), 14–30. https://doi.org/10.1037/a0035858
• Prock, K. A., Berlin, S., Harold, R. D., & Groden, S. R. (2019). Stories from LGBTQ social work faculty: What is the impact of being “out” in academia? Journal of Gay & Lesbian Social Services, 31(2), 182–201. https://doi.org/10.1080/10538720.2019.1584074
• Stone, S. D., Crooks, V. A., & Owen, M. (2013). Going through the back door: Chronically ill academics’ experiences as ‘unexpected workers’. Social Theory & Health, 11, 151–174. https://doi.org/10.1057/sth.2013.1
• Tolich, M. (2010). A critique of current practice: Ten foundational guidelines for autoethnographers. Qualitative Health Research, 20(12), 1599–1610. https://doi.org/10.1177/1049732310376076
• Travers, C. (2011). Unveiling a reflective diary methodology for exploring the lived experiences of stress and coping. Journal of Vocational Behavior, 79(1), 204–216. https://doi.org/10.1016/j.jvb.2010.11.007
• Warnock, D. M. (2016). Paradise lost? Patterns and precarity in working-class academic narratives. Journal of Working-Class Studies, 1(1), 28–44. https://doi.org/10.13001/jwcs.v1i1.6013
• Werth, S. (2011). Stigma, stress and emotional labour: Experiences of women with chronic illness at work. In Proceedings of the 25th Conference of the Association of Industrial Relations Academics of Australia and New Zealand.
• Wilkinson, M., & Pickard-Smith, K. (2023). Disabled women are significantly under-represented in senior roles within universities. Here’s how – and why – institutions can and should support them better for career progression. Retrieved from: https://www.timeshighereducation.com/campus/howpromote-disabled-women-academia
• Wilkinson, S. (2019). The story of Samantha: The teaching performances and inauthenticities of an early career human geography lecturer. Higher Education Research & Development, 38(2), 398–410. https://doi.org/10.1080/07294360.2018.1517731
• Wilkinson, S., & Wilkinson, C. (2020). Performing care: Emotion work and ‘dignity work’ - A joint autoethnography of caring for our mum at the end of life. Sociology of Health & Illness, 42(8), 1888–1901. https://doi.org/10.1111/1467-9566.13174

APA

Wilkinson, S., & Wilkinson, C. (2024). Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses. International Journal of Changes in Education, 1(1), 4-10. https://doi.org/10.47852/bonviewIJCE32021657

Vancouver

Wilkinson S, Wilkinson C. Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses. International Journal of Changes in Education. 2024;1(1):4-10. https://doi.org/10.47852/bonviewIJCE32021657

AMA

Wilkinson S, Wilkinson C. Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses. International Journal of Changes in Education. 2024;1(1), 4-10. https://doi.org/10.47852/bonviewIJCE32021657

Chicago

Wilkinson, Samantha, and Catherine Wilkinson. "Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses". International Journal of Changes in Education 2024 1 no. 1 (2024): 4-10. https://doi.org/10.47852/bonviewIJCE32021657

Harvard

Wilkinson, S., and Wilkinson, C. (2024). Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses. International Journal of Changes in Education, 1(1), pp. 4-10. https://doi.org/10.47852/bonviewIJCE32021657

MLA

Wilkinson, Samantha et al. "Pain, No Gain? A Joint-Autoethnography of Our Working Lives as Academics with Chronic Illnesses". International Journal of Changes in Education, vol. 1, no. 1, 2024, pp. 4-10. https://doi.org/10.47852/bonviewIJCE32021657